Workshop 3.5 - Cross-Border Healthcare / European Reference Networks – IT Challenges and Solutions

Wednesday, May 29th 2019, 13:30-15:00

The ERN Mission – Challenges and Opportunities for Rare Diseases (Introduction)

Ruth Ladenstein

St. Anna Kinderkrebsforschung

 

 

 

The Contribution of the European Commission: The European Platform on Rare Disease Registration

Simona Martin

Joint Research Centre - European Commission

 

 

 

The Contribution of the European Commission: CPMS

Caroline Paquier (tbc)

European Commission

 

 

 

The Contribution of the European Joint Programme on Rare Diseases: EJP-RD

Ana Rath

Director Orphanet, Inserm US14 - Orphanet

 

 

 

 

 

EUPID - European Patient Identity Management Services

Michael Nitzlnader

AIT Austrian Institute of Technology

 

 

 

Moderation

Ruth Ladenstein

St. Anna Kinderkrebsforschung